Virus Hijacks Mitochodria
-
This is a short interpretation of a paper I (sort of) read yesterday (I
skipped around a lot and read the short version of it on another web site).
"To sp...
Just Breathe...
-
Trying to multi task major things is quite challenging for someone
suffering from this disease, or anyone with any sort of cognitive
difficulties.
I don't...
Love Me Fridays
-
I love my parents! I’m lucky that I get to spend more time with these
truly wonderful people, and I learn so much more about them as an adult!
It’s funny...
Links of the day 06/01/2012
-
-
Vitamin D Prevents Falls, Disability in Elderly
"Newly reported research studies reiterate the benefits of vitamin D in
older a...
They Say 3rd Time's the Charm?
-
We are home from the orthopedic surgeon's office. After nearly a week and a
half (9 days) of thinking it was just a bad sprain or bruise, our
9-year-old...
Poor vs. Quality Customer Service
-
One thing that easily frustrates me is poor customer service, especially if
I’ve been a longtime patron of a business. You know when the phone is the
only ...
You Can Get To Livin' Or You Can Get To Dyin'
-
...but you can't do both. I had a doctor say this to me once. Not one I
was particularly fond of, I might add, but I saw the truth in his words. Of
cour...
Sunny Days Are Here Again
-
So, exactly two weeks after I stopped taking digoxin, I had a really good
day on Tuesday. Quite bizarrely, since on Monday, I still felt like crap.
It's so...
Fibromyalgia and Back Pain
-
Fibromyalgia and back pain is a timely topic. Learn more about conquering
back pain and overcoming Fibromyalgia with pool therapy on the Health
Matters Show.
Water and Stars
-
I like poetry. Ever since coming across those lines from A Child's Garden
of Verses by R.L. Stevenson (about the pail by the wall being half full of
water...
Everyone has Gone
-
It is quite common for this 4wd ute of Roger's to blow fuses. It is still
a work in progress. There was a fuse here that got S going this morning
but he ...
Research suggests that CFS is an autoimmune disease
-
Benefit from B-lymphocyte depletion using the anti-... [PLoS One. 2011] -
PubMed - NCBI CONCLUSION: The delayed responses starting from 2-7 months
after Ri...
One Day - One Pound
-
Following on from the success of the One Day - One Pound event on ME
Awareness day 12th May - the original idea from Ruth Gilchrist and event
created by...
Det er JUNI dere!
-
Juni altså! Sommermåned! Selv om varmen forsvant litt etter pinse her i
Oslo, så er jeg helt sikker på at juni blir en fin måned. Men før vi løper
ut i gre...
It's like being switched off
-
Funny how the BBC can do a serious report about “chronic fatigue” when it
isn’t about ME!
*'It's like being switched off'*
http://www.bbc.co.uk/news/healt...
Facts about chronic fatigue syndrome
-
Fatigue and constant exhaustion: Why do I always feel tired? Why am I tired
all day long? What are the medical causes? Many medical and psychiatric
disor...
Watching the Grass Grow
-
or Taking Turns
Baseball is nothing if not a leisurely sport. For some, the pace is part of its appeal. A lot of the game is cerebral, with batting order ...
Patients For A Moment: Starting Fresh
-
Patients For A Moment has always been one of my favorite blog carnivals,
focusing on patient perspectives. I'm happy to be hosting this edition at
Chroni...
Behind The Scenes
-
Behind the scenes, what a week it has been. My laptop hard drive took a
nose dive on Saturday afternoon. It is now in cyber heaven along with ALL
my pictu...
Pregnancy & autoimmune illness
-
Interesting programme from Radio Scotland on the seemingly miraculous
remission of autoimmune illness sometimes experienced by pregnant women
(some, on the...
Walk a mile in your own shoes
-
I’m still struggling with my future. Unsure of where I should turn next. I
was reading through my old posts and found one where I promised to not feel
guil...
Product Review: Thermoskin Arthritic Gloves
-
I’ve been looking for some compression gloves one grade firmer than my
usual IMAK arthritis gloves. After reading a number of reviews I decided to
give The...
Crafting My Way Back To Life
-
I have missed blogging so much over the past few weeks – believe me, it was
completely unintentional to disappear on you for so long. To begin with I
w...
Not happy....
-
Several years ago, a friend and I had both made fruitless attempts to get local churches to help with my housework and yard work -- I'm not old enough or...
Mutiny of the keys
-
My piano has needed repair for a few weeks now. First an oft-used key
started hitting a couple of strings at once. Then other keys followed suit.
It's pain...
THE PATIENT JOURNEY THROUGH LYME DISEASE
-
Pamela Weintraub's statement at Lyme Next Forum, Skidmore College, May 21,
2012 can be seen on an earlier posting here ( permission given to re post)
I...
…a little better all the time…
-
Memorial Day weekend is my sickiversary. Eight years today. Things are
looking up, though – I think I’m doing better now than any point since the
end of 20...
Die Rechnung bitte, aber pronto!
-
Stellt euch mal vor, ihr geht einkaufen. Zum Beispiel im Supermarkt. Ihr
fangt an, Dinge in den Wagen zu packen. Dinge, die ihr braucht: Brot
vielleicht, M...
Please Stop Conflating Math and Science
-
Here is a plea: Save the children. Save them from being harassed by the
best intentioned and most visible public figures. Please stop haranguing
them about...
11 Tips From 11 Years Sick
-
A year ago, I posted a piece titled, “10 Tips from 10 Years Sick.” Well, a
year has gone by and I’m still sick. So, I’ve re-visited that post,
changing som...
Honeymoon, Venice - Lots of photos
-
Well Hello People…
I’m back from my honeymoon. Here you can see some of my photos. All in all
it was a great success. My energy was better than it has bee...
Theta Healing
-
I'm delving into learning about and using this technique to clear my energy and my subconscious blocks that keep me stuck---stuck in many aspects.
I think I...
Flying into the Light
-
Some of you might, or might not... remember a work in progress which I
shared with you mid November of last year. It is called *Into the Light. *I
had star...
Gifts, Not Wars
-
So I am way late in writing about the now-infamous *Time *cover story "Are
You Mom Enough?"
I’ve read lots of responses to it, including this thoughtful Bo...
TWiV 185: Dead parrots and live Wildcats
-
On episode #185 of the science show This Week in Virology, Vincent visits
with members of the Department of Microbiology and Immunology at
Northwestern Uni...
My Lyme follow-up doctor appointment
-
I just had my first doctor's visit with my CFS specialist since starting
antibiotics for the Lyme 6 weeks ago. My blood work for the few tests came
back at...
Dr. Burrascano in Ridgefield CT
-
Dr. Joseph Burrascano and Dr. Eva Sapi spoke in Ridgefield, CT on May 22,
2012. Here is a video of Dr. Burrascano speaking on diagnosis and treatment
of...
Regent Theatre 24 Hour Book Sale 2012
-
Regent Theatre 24 Hour Book Sale 2012, a set on Flickr. Here are photos
from the Regent Theatre 24 Hour Book Sale in Dunedin 25 May 2012. Paul S
Allen
Time to Register for Public Comment for CFSAC!
-
Finally! CFSAC has opened requests for public comment for the June 13-14
meeting. You can provide public testimony in person, by phone, or by
video, but ...
Feeling blue...
-
Was getting a bit bored the other day...what could I do to bring some
excitement into my otherwise mundane & humdrum life? Like all brilliant
solutions, th...
-
*LOOKING FOR SOMETHING TO SEND AN ILL FRIEND/RELATIVE?*
Look no further than this great little company I just heard about...one of
their healing boxes woul...
Retreat
-
Lake Superior Beach
Over the long weekend (Victoria Day), my friend J and I went for a retreat
an hour and a half south of here. It's a little motel right...
Weeds, Spontaneity and Perseverance
-
Lately I’ve been getting slammed more than usual by this disease. I’m
fairly sure there’s no pain in my eyelashes but the level of pain,
exhaustion, immun...
Coiling update, May 2012
-
I've been coiling for Lyme for five months, so I figure it's time for an
update.
After four sessions in January using 306 Hz, I decided to switch to 432 Hz...
CFS–The Mold Tour
-
Welcome back my friends, to the show that never ends….ELP For a few years
now, I’ve been living a lifestyle based around mold avoidance. By “based
around”...
things change.......
-
all the time. tomorrow i begin hypnotherapy. im not expecting much. to
rid myself of twenty years being told i had anxiety, instead of a chronic
il...
Wuthering Heights of Reactivity
-
There’s this saying we have amongst us rookies in the biotoxin avoidance
game: “I hate it when Lisa & Erik are right.” It’s not out of disrespect
or obsti...
Crash and Burn
-
Ah yes another huge gap between blog posts, I’m sorry. I’m sure you will
all understand though as most of my readers have chronic illnesses like
myself wh...
No more minocycline and guilt over happiness.
-
The reason I have this blog is to keep track of my symptoms and
occasionally share a ramble. I never imagined I’d be getting thousands of
visitors… Thank y...
In which I wish my neighbours would go camping.
-
Granite under skin: gratefully, sun-warmed. Chill mountain water dries off
fast, the print of my hand soon shrinking away. Around my hand, the glints:
if I...
How music gave me hope again
-
The last few weeks have been exhausting. I’ve been working almost round the
clock trying to fundraise my tuition money for France while also visiting
famil...
The unpredictable weather continues...
-
A a result I have spent the last two weekends gardening.....breaking all my
self imposed rules.....and I'm now paying the consequences. The garden is
loo...
Profit and Loss
-
For patients to have confidence in the doctors treating them, it is
essential that each patient is certain that treatment recommendations given
by their do...
PLAY IT AGAIN, AND AGAIN AND AGAIN
-
A New ME Outbreak?
A group of mostly female students aged 12 to 19 in San
Antonio, Texas, have come down with a constellation of symptoms physicians are...
California
-
Last June, when I was feeling awful from the CFS I got on a plane and flew
across the country to Los Angeles, California. It was to see a boy that I
was cr...
Changes in body, exercise and weight …
-
This week I met with my personal trainer who is now taking me to Phase II
if you will of my exercise routine and getting my body as healthy as
possible. Wi...
Lower Weight Equals Lower Blood Pressure
-
[image: BLOOD PRESSURE CHECK]BLOOD PRESSURE CHECK (Photo credit: Morning
Calm News)I'm in the midst of my second round of hCG drops, or phase 2 of
the hCG ...
Facebook Syndication Error
-
This feed URL is no longer valid. Visit this page to find the new URL, if
you have access: <a
href="http://www.facebook.com/profile.php?id=123675807654046"...
Slugs too trusting
-
I never know what to do with the nightly explosion of slugs in my garden.
They cause conflict in the 'Never Be Cruel To Animals' part of my brain. I
go out...
The Universe Just Keeps on Giving! :P
-
Unfortunately, those gifts just aren't always good!!! Sigh.
We just found out today that my GP has suddenly up and left the surgery,
with no warning whats...
LeRoy and the next age of mankind
-
Here is my take.
Let's get situated in LeRoy
For example, doctors may perceive from the circumstances, such as the
patient's age, healthy complexion,...
Poem for ME Awareness, 2012
-
It’s Not ME, It’s You I don’t need someone to tell me how easy it can be To
climb a two-inch mountain or remember how to breathe I don’t need more
motivati...
Amara's 3 wishes
-
To all governments workers, politicians, physicians, decision makers. I
dare you watching this with a dry eye. There are millions of Amara around
the world...
Keep Calm & Fight Fibro
-
(This is not my work nor do I not claim it to be.. I found it in my friends
wall on Facebook. If you have publishing rights, please contact me)
-
What can I say? Long Time No See! Sometimes Life just keeps Happening! But
here we are in our new home, been here a while now. I'm crazy gardening at
the ...
ME Awareness week 2012
-
It's that time of year again, when I spam your facebook or twitter news
feed with stuff about ME and you either just roll your eyes and ignore it,
or read ...
M.E. International Awareness Day
-
Today, May 12th, is M.E. International Awareness Day. M.E. is real, it is
physically and mentally debilitating and it does not discriminate. It has a
prof...
May 12 International Awareness Day 20th Anniversary
-
On Saturday May 12 please wear blue and save a blue ribbon to your
computer to help raise awareness for Myalgic Encephalomyelitis/Chronic
Fatigue Syndrome...
Living in a Dark World - ME Awareness Week 2012
-
*Please bare with me on this post. Drugged to the eyeballs on my medication
due to pain so somethings may be a little confusing or not make sense so
pop...
May 2012- A Treatment Update
-
I must preface this blog entry with another apology for my lack of writings
in recent months. The fact of the matter is that using the computer causes
me c...
God's Immense Love
-
"But you, O God, are both tender and kind, not easily angered, immense in
love, and you never, never quit. So look me in the eye and show kindness,
give yo...
Living a Limp Along LIfe: M.E. Awareness Day 2012
-
After so many M.E. Awareness Days there seems nothing left to say, nothing
to add…and yet when so little has really changed for people with M.E. it
seems...
Counterproductive Post
-
I am really sorry for having been MIA for a while. I owe a number of you
responses. I am not doing too well, but I am well taken care of. So,
please: no wo...
-
I came across this blog here
http://www.cfsrecoverypath.com/tools/a-summary-of-leading-cfsme-protocols-part-1-tool/which
reminded me to detail my experienc...
A little static anyone?
-
Happy Saturday to you all today. I've been thinking about something for a
couple of days now... I'll be curious as to what you all think too.
On Thursd...
Ballot
-
Today is one of those rare days in which I do something which makes me feel
like a proper grown-up. I went to the local polling booth and voted in the
loca...
Even freelance hermits like social networking
-
Orright! Here's an administrivial update. Anticipating an imminent future
lifestyle wherein computer access will be scarce and a mobile phone my
primary in...
A Post of Many Facets
-
Beltane blessings and welcome to the merry month of May
I'm pleased to say the weather here today has been glorious and am now
sitting looking out of the w...
Piggies!
-
My new camera – I love it! I’ve been having a great time photographing all
kinds of things on the island. It’s not uncommon to see me lying on my
belly in ...
-
'There is a sacredness in tears. They are not the mark of weakness, but of
power. They speak more eloquently than ten thousand tongues. They are
messenger...
Your Story
-
With so many changes happening in my life right now, and so many unknowns,
I keep this quote in my purse, on a crumbled piece of paper.
"The only thing st...
15 Ways Hepatitis C Treatment is Kicking My Butt
-
In eight weeks, I've moved from the hard part of Hepatitis C treatment
into the uphill climb portion of the journey.
So today I am going to share som...
What am I paying for?
-
On top of everything else, I’m being plagued with migraines. Even had to
visit the ER on one occasion. My doctor prescribes a medication I took a
few years...
Have You Met My Friends?
-
Have you met my friends? Dizzy, Lightheaded, Fatigue, Screaming Pain? And
the twins Light Sensitivity and Sound Sensitivity. They won't let me go out
today...
Role of impaired sleep in fibromyalgia pain explored
-
Patients coping with the complex pain disorder fibromyalgia often have
difficulty sleeping, and a new study reports that despite the negative
quality of li...
Shooting Straight On CFS/GWI/Autism/Lyme.
-
Although we do not have definitive biomarkers for CFS at this time, we
have proven that two subsets exist within the CFS disease. In one subset,
up to 75...
Physician's Round Table 2012
-
Sue Vogan hosted the 2012 Physician's Round Table (PRT) in Tampa, Florida
on January 26-28, 2012. It was *one of the best conferences* I have been
to. ...
Recipe: Raw chocolate mousse
-
For Easter I decided to make a raw chocolate mousse. It was divine!! Of
course this treat could be made …
Continue reading »
Rivka's "How To" Guide for ME/CFS Demonstrations
-
I'm posting the following on behalf of my friend and fellow advocate, Rivka
Solomon. Read on: Rivka covers everything you need to know to put on a
succes...
conundrum
-
For Art Journal Caravan w/Tangie Baxter: Itinerary #13 {Wordography:
Conundrum} This word had me stumped (ha!) for quite awhile. Then I
considered the main...
Overwhelmed with fear and anxiety
-
The last few days have been pretty rough as I've been feeling overwhelmed
with fear and anxiety. I have an almost constant tense feeling in my head
which w...
More shit I'm afraid
-
Firstly HAPPY EASTER everyone, I hope you are all enjoying time with your
families or friends.
Now, on to business …. As sick as I am and as sick as I hav...
In the Meantime...
-
There has been much I would have liked to have written about in the last
many months, but my health has just been too poor. I hope to be well enough
to sta...
Mentally Yours
-
Physical or mental? A perspective on chronic fatigue syndrome
is an excellent paper. I found it helpful because it looks at why the 'mental or physical' dia...
Writing Frustrations
-
I'm frustrated with my writing right now.
I feel no inspiration at all. Everything I write feels forced and trite. My
mind contains good, no, great ideas. ...
Losing Weight with ME
-
I’ve been trying on and off to lose my excess weight since I gained it
which is going on 12-13 years. I did lost a stone early on and another
stone and hal...
-
Hi Everyone, I once again am starting to feel like a hypochondriac and
becoming sensitive to odors, bright lights, and loud noises. While there
are many si...
#8 Whirlwind (or quiet unraveling?) of Healing
-
(Before I begin this delicate topic, I wish to give sincere tribute and
respect to those who have suffered for decades without healing, and don't
see any...
#124~ ME/cfs: Emily's Last words ~ RIP
-
Well folks, That "Invisible Illness" ME/cfs has just claimed another loving
soul.
Another that fought long and hard and did her share of Advocacy..
Please s...
ME-mysterie til Folkehelseinstituttet
-
Den 3. mars var det et stort oppslag i Budstikka – i Bærum ser man det som
kan minne om et epidemisk utbrudd av ME. I går (14.03) var det et nytt
oppslag i...
Household Of The Disabled
-
We have a unique household in that each of us; human, feline and canine are disabled in our own way. I shall deal with our pets today as our oldest cat, Jun...
Quick March Update
-
March 2012
Jenny was due to start a new medicine in January but quickly found out that
it did not react well with one of the tablets that she was already...
Contributing factors
-
I've found a cheap vegepa substitute to try out at our local superdrug: I'm
thinking that if it works then it's not so much the lack of DHA in Vegepa
that ...
Tusen takk for meg – enn så lenge! :-)
-
Dette er en bloggpost jeg skriver med blandede følelser etter å ha gått
mange runder med meg selv og mine nærmeste. Når jeg startet denne bloggen
var det f...
It’s hard not to feel lazy
-
When you’re house isn’t even close to clean and tidy and you’ve got a
basket of washing and clothes still …
Continue reading »
denial dressed up
-
I saw this recently. It sickened me to my stomach:
"Parents are the active sculptors of their children's growing brains. The
immature brain of the child i...
Update
-
As I have not written about my health in many months, several people have
kindly asked for an update. The short sweet answer is that I am better,
overall...
Novena Publicaton
-
Novena to the Holy Spirit. Thank you for answering my prayers.
PRAYER TO THE HOLY SPIRIT (pray for 3 days or 3 hours straight) Holy
Spirit, You who make m...
Verizon Hell
-
Some changes are afoot in my life, which is my way of explaining my ongoing
absence here on my blog. Those changes have necessitated changes in my
home's u...
Day 25 Joy Dare
-
One grace borrowed, one grace found, one grace inherited. One grace found –
I nominate the physiotherapist I’ve been seeing since last fall. My
husband, w...
ME Fundraiser May 19th
-
Ok Guys, We have now secured " DONNA FLEMING" - As DOLLY for our ME
Fundraiser a show not to be missed. Ticket price to be confirmed, more
details to follo...
Lab test done before taking Ursobilane treatment
-
Total Bilirrubine: *1.6 (0-1.2)
Direct Bilirrubine: *0.5 (0-0.4)
Indirect Bilirrubine: *1.10 (0-1)
Amonio in serum: *60 (11-35)
Total Cholesterol: 215 (<220)...
THE HEART OF THE MATTER...
-
No news is not really good news in this case. For almost six months I have
had a very hard time getting in the mood. I have been worrying a lot about
the...
Oh Lord, give me loving friends and . . .
-
...a great virtual assistant, and I'll steal the rest.
So, I've always wanted to blog about the things I'm learning in my journey
toward becoming a film pr...
Moved...
-
We have outgrown Blogger, with hundreds of comments per post. I have set up
a website for my practice (under construction) on Weebly, and plan to
continue ...
so this is the new year
-
Last January I made a some New Year’s Resolutions. Here’s how I got on…
Look after myself and get better – Well I don’t know. I feel like I’ve
looked after...
Why won't CDC study MY disease?
-
Testimony to the
Chronic Fatigue Syndrome Advisory Committee
U.S. Department of Health and Human Services
Washington, DC
November 8-9, 2011
Mary M. Schweitz...
Blogging Hiatus
-
I think I need to declare a break from blogging, or perhaps change the way
I do it. I find I am really only blogging for myself these days, to
remember wha...
dream
-
I had a happy dream last night.
I was outside. I don't know what time it was -- dark enough to be able to
see the stars, but light enough to see. All of th...
A Call For Help
-
Maria's Story - Click for YouTube vid
We are getting close to Christmas. A time when many of us spend a lot of
money on luxuries. I am writing this pos...
Something to talk about
-
Time has been passing in my ME way. Foggy days, blurry vision, lost
threads of thought. Then, in the way of ME, a period of being relatively
better appea...
Where is Dr. Mikovits? Here is the answer.
-
This news is not a novel. It is actual news from a woman who wrote a novel
about chronic fatigue syndrome. And it is good news for all of us.
http://www.cf...
A Conversation with Dr. Ian Lipkin
-
There were some rumors floating around the ME/CFS community regarding Dr.
Ian Lipkin’s study of MLV/XMRV/HGRV. I decided to use the power of the
press and ...
When Your Body Cries Wolf
-
Do you ever feel like your body is constantly crying wolf? Do you think that you may mistakenly write off a symptom as part of your illness because of so ma...
How do Cell Signaling Factors Work?
-
A seminal advance by Brian Kobilka out of Stanford and published in Nature
has begun to elucidate the mechanism by which small LMW peptides can induce
very...
CJ'S 12 Days Of Christmas
-
Day One of workshop and the assignment was Balancing Act. The brief was to
take a set of photos indoors testing different WB settings
Drifting on a Sea of Disconsolation
-
Seriously, I'm out of control. It's kind of my favorite explanation for my
life right now. "Get out of the way, everybody! Don't act like you weren't
warne...
I'm Embarrassed By the Fact I Wasn't Embarrassed.
-
You know you suffer from chronic pain when you cry in public and don't give
a monkey's ass about it. The good thing was it happened in a restaurant and
I w...
Rituximab and immune system "resetting"
-
Inspired by friend and fellow blogger Rambler, I'm getting back to doing
some blog posts.
The big exciting news in ME/CFS is coming courtesy of two doctors...
Imagine...
-
(For the five[?] of you still reading...a brief lapse in the
illness-induced silence as the muse paid me a visit this morning.)
Dear Dr Collins,
I respect...
Doctors and Bankers: Unaccountable Professions?
-
http://www.meactionuk.org.uk/Doctors-and-Bankers.htm
Margaret Williams 4th November 2011
On 3rd November 2011 The Daily Telegraph published an article in...
When Only Able to Do Nothing
-
Most of my days I am surprised and delighted by the movement my body is
able to do with the help of medicine. It often moves, with deliberate,
easy, movem...
-
*Going Private (nothing to do with health care!)*
To all regular readers of this blog - I've decided, with reluctance and
after much thought, to "hide" thi...
Reverting
-
I changed the name of my blog back to "Living the CFS Life." So much for
XMRV. At least it has drawn attention -- and research dollars -- to our
disease....
I'm resting
-
I've found the strength to rest (hallelujah!) I've realised that blogging
isn't resting so I'm taking a week off.
P.S. Thank you to my (able)body-double ...
Cabin Fever
-
I love our home, which is off the beaten path. The acreage gives us
privacy, and being surrounded by forest is very peaceful. A creek meanders
through th...
What to do in Honor of Amberlin Wu
-
It’s been a tough week in ME/CFS land. Researcher / institute divorce and
allegations of researcher fraud have left many patients disillusioned. I’ve
seen ...
Farm Princess
-
* *CFS has been deemed an “invisible disease” because it consumes you from
the inside out. It attacks every system and cell in your body. Pain and
suffer...
It's All In My Head
-
My health problems are in my head—literally. Research, monitoring my heart
rate for 3 months, and Dr David Bell’s home test
http://aboutmecfs.org.violet.ar...
What's Up With Me?
-
Obviously, I've fallen off blogging. I'm popping my head up momentarily to say I intend to be back, but not for a while. I'm taking a sabbatical from blogg...
Buy Dr. Wessely a Barrel?
-
Psychiatrist Simon Wessely, speaking of "CFS" researchers, was recently
quoted: “People will rather go over Niagara in a barrel than ever getting
involved...
Patient Actions
-
Environmental Illness/Multiple Chemical Sensitivity Petitions Position
Statement: Multiple Chemical Sensitivity Italian Petition for recognition
of Multipl...
Living With the Doubts, For Now
-
I came back home on Wednesday, from Seattle, and the island felt like as
much of a miraculous change as before. My first stop going into the
drugstore, in ...
Life, love and work
-
Well it's been over a year since I last blogged apparently! The main reason
for that really being that life has been moving on and strangely one of the
thi...
Reflections on Invisible Illness Awareness Week
-
Invisible Illness Awareness Week is nearly over. I am sitting at the
computer reading through some of the many the blogs, articles, comments and
more that ...
Fun facts to know and tell ...
-
1. Yes, contrary to all I felt to be true, one CAN "come back" from a four
month crash.
2. WPI DID win $100,000.00 to further ME research.
3. My A1C is 5.4 ...
Unravelling contd.
-
Thanks all for your supportive comments. It really helped to blog it out.
My fears about the psychiatrist not understanding were completely
unfounded. He, ...
The threat is on us, not by us
-
Hello peeps
Been offline for a wee while, been busy moving house and recovering from
moving house. Moved into a lovely bungalow (no stairs!) which is maki...
Tell Your Story on HEYWIRE
-
Tell your story of Life with CFS in Australia. Are you aged between 16 –
22 ? ” The HEYWIRE competition is now open to people aged 16 – 22, to
submit a s...
I love and accept myself...?
-
Hey Beautiful People
I have a new post at The Reinvention Tour on learning to love myself
wrinkles, muffin top and all...!
This is the last time I wil...
Recess is over — back to the blog
-
Sunday, July 31, 2011 I figure a year and two days is a long enough pause
in any blogging enterprise so here I am. Fortunately my absence has not
been due ...
Thoughts on Summer
-
I love everything about summer. I love warm weather, sitting in the sun,
swimming in the ocean, grilling out, shopping for seasonal fruits and
veggies at f...
Vote for WPI!
-
[image: Vivint is giving away $1.25 Million to charities. Help us win!]
The Vivint Givesback Project needs your help in honoring local charities
that are do...
Life continues, but not this blog.
-
Gosh, I’m sorry I left so many people wondering what has happened to me
over this past year. I’ve gotten almost well, and am painting like a
fiend, and te...
Peoples’ Forum: Corrib Gas – Great Gas for Whom?
-
http://www.shelltosea.com/content/peoples-forum-ten-years-corrib-gas-great-gas-whom
PEOPLES’ FORUM TEN YEARS ON; CORRIB GAS – GREAT GAS FOR WHOM? Friday 1- ...
Vote for The Whittemore Peterson Institue
-
Vivint is giving away $1.25 million to a charity and facebook users vote
for the charity they think should win. Through facebook you can vote and I
would r...
Advice for the Whippersnappers
-
Sometimes I think about what advice I would give someone who just figured
out they have Chronic Fatigue Syndrome. It's the same thing as imagining
what I...
Vote for WPI!
-
Hi everybody!
We're writing to you today to ask you to show your support to the ME
research via the Whittemore Peterson Institute.
They are running for th...
Pretty simple, huh?
-
*http://tinyurl.com/6a2baeh*The Telegraph today may be showing pretty
pictures of bacteria but they display OLD-STYLE microbiology when we know
at a molec...
Myalgic Encephalomyelitis: for the uninitiated.
-
ME stands for Myalgic Encephalomyelitis and is a seriously debilitating,
tortuous and sometimes fatal neuroimmune disease. I'm not able to be
involved in M...
A year on
-
Blimey, didn't realise it's been a year since I last updated!
As today is ME/CFS awareness day I thought I would spread the word again
and have linked last...
-
ME/CFS Demo May 10, 2011 -- Dept of Health and Human Services, Washington DC
Contact: Rivka (at) ThatTakesOvaries (dot) org
On May 10, 2011, 6 individual...
healKick is Live!
-
To All Young Adult Patients 40-&-under: We now have our very own social network www.healKick.com designed to break our isolation. Just a few highlights: IM c...
Twibbons for Profile Pictures
-
I’ve made a range of Twibbons from the awareness badges. You can add a
ribbon to your profile picture for things like blogging, Facebook and
Twitter using ...
Hiatus
-
Due to the condition of my health, I am forced to stop doing almost
everything... except manage my illness. I am very upset about this, but I
can do n...
An Interview with Laura Hillenbrand
-
http://www.naturalsolutionsmag.com/articles-display/15878/keyword/hillenbrand/Living-with-Chronic-Pain
Some excerpts:
*...
Nutritional Balancing Science
-
Over the past 3 years I have trialled all available treatments I have come
across for ME/CFS. Steadily over time I became more and more unwell which
is why...
Resurfacing
-
Going up or down? Is the title of another beautiful image of my friend Vlad
@ Vladstudio. His wallpapers and images are free to use. Amazing artist.
Th...
-
COUNT ME IN is a global fund-raising event from your own home on the
20th of every month of the year to support biomedical research being
carried out by th...
All you need is to whitewash these old walls...
-
...and paint something new. It's an idealistic concept that you could just
throw white paint at your entire life and rewrite everything.
I know, I know! I'...
I'm a veteran.
-
I may be a beginner at blogging, but I'm a veteran at CFS/CFIDS/ME
(different names for the same disease). I caught what the doctor thought
was the flu in...
An Update
-
[image: living chronically cfids]
Good Lord - I haven't posted since May. For shame. For shame.
Thought I'd add a little update and let you know that I st...
-
Is today the day when everything changes regarding ME/CFS?
Maybe.
"Scientists to discuss research on XMRV in blood, chronic fatigue syndrome"
National I...
Let's go to Mexico!
-
I'll let my sister add this:
"I would like to give some concrete information about specific complaints
the clinic here helped my with that I could not find ...
ME Awareness Week 2010.
-
This year I was hoping to write something witty, interesting and
informative, but then several months of unrelenting brain-fog set in and I
have absolute...
My Face ... My Strategy
-
It’s not enough for me to let you know I have Chronic Fatigue Syndrome and
I don’t feel good. I want to give you details, about an astonishing variety
of s...
Windows in Time
-
I have a window, a brief, clear window. The sun shining brightly through
it, always open to let the cooling breeze waft over my awakened body. It’s
been...
Dr. Judy Mikovits XMRV Q & A by ProHealth
-
Dr. Judy Mikovits XMRV JANUARY 22ND 2010
by ProHealth
Dr. Judy Mikovits XMRV Presentation from ProHealth on Vimeo.
Dr. Judy Mikovits XMRV Present...
2010 update
-
So, I sort of left this blog hanging at the most suspenseful moment. But I
guess people are still finding it, so I'll update. I'm doing much, much
better...
Struggling
-
Boy, the last few days I have really been struggling. Thursday night my
sleep was disrupted and I really went downhill from there. Friday and
Saturday were...
first month starting out with valcyte
-
*week 1*
so i am starting out on 1 pill a day (450 mg). so far i'm not feeling any
difference. with valcyte you are supposed to feel a die-off effect, takin...
Just a note..
-
...to say that I am actually still alive and well, and dare i say it,
almost thriving!!
Still no internet though.. SIGH.. looks like it'll be February bef...
Finally, I've given up
-
So, during the past couple of months, I've been up and down. Mostly down.
In fact, I've been progressively getting worse and a couple of weeks ago I
told D...
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