Blog List - By Most Recently Updated (Tracking 300+ Trending Blogs)
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Arizona GOP censures Flake, Ducey and McCain, signaling a fractured party in a key swing state - CNN
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1. Arizona GOP censures Flake, Ducey and McCain, signaling a fractured
party in a key swing state CNN
2. Arizona Republicans censure Cindy Mc...
7 hours ago
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President Biden appears to remove Trump’s Diet Coke button from Oval Office - Fox News
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1. President Biden appears to remove Trump’s Diet Coke button from Oval
Office Fox News
2. Trump button used to order Diet Coke disappears fr...
10 hours ago
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It Was a Great Inaugural, but Did Biden Wade in Too Far, Too Fast?
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It was a good day. Warm in its content. Soft in its delivery. Kindly in its
message. Generous in its intentions. Healing in its purpose. Implementing
the s...
1 day ago
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Large Long COVID Study and Major Media Articles Underscore Link to ME/CFS – Plus Countdown for the NIH
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“The findings show that—even in those people who don’t require
hospitalization for severe COVID-19—the condition’s prolonged symptoms are
having a major ...
1 day ago
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Biden’s pandemic plans
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The Biden-Harris administration has released a document describing its
plans to bring the United States out of the ‘worst public health crisis in
a century...
2 days ago
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The ER during COVID
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The weekend before my recent injections my pain was skyrocketed. My post
Christmas flair is getting worse and worse. Normally when I hit a 7/10 or
just pro...
2 days ago
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Guardian: The NHS must learn from its mistakes with other post-viral conditions such as ME/CFS – more research is vital
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George Monbiot spoke with Dr Charles Shepherd before publishing a very good
article about the lessons that should be learnt from ME/CFS for those now
suf...
2 days ago
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ANNOUNCING THE PUBLICATION OF SEVERE ME: MORE NOTES FOR CARERS
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It has been an impossible, agonising struggle, under the most horrendous
circumstances, but I so much wanted to produce a detailed, comprehensive
Care G...
2 days ago
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Facial Fillers in Fort Worth
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If you would prefer to reestablish a young completion to your face, dermal
fillers might be the appropriate response. Polavarapu Plastic Surgery, PLLC
offe...
3 days ago
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TV Tuesday: Home Before Dark
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When I finally joined the 21st century and got a smartphone last summer, an
iPhone, a free year of Apple TV came with it. I had wanted to see *The
Mornin...
4 days ago
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To Nap or Not to Nap
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Many people with ME/CFS and similar illnesses like Fibromyalgia and Lyme
Disease and Long Covid, struggle with the issue of whether or not to it’s
OK to ...
6 days ago
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Acid Reflux/GERD – what is known
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A reader asked me about this and I have not had to deal with it but I know
it is common. Acid Reflux is also called gastroesophageal reflux disease
(GERD)....
1 week ago
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New Theme: Twenty Twenty One
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Check out our new default theme, Twenty Twenty One!
1 week ago
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2021 New Year’s Reflections Inspired by Four Haiku Poems
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I hope you’ll take the time to think about the good things that happened in
2020. The good is always there; sometimes we have to stop and consciously
call ...
2 weeks ago
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Choose a Challenge to help save Jenny’s life: #FaveToSave or #DenForJen
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#ChooseAChallenge to help fundraise for life-saving surgery for Jenny:
• #FaveToSave – Post a photo of yourself in your favourite outfit, the one
that br...
2 weeks ago
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Can I help you? Working 9 to 5, in the Gift Shop of Life
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It's 2021!
Here we are, in a full-blown Covid crisis. Honestly, I can barely look.
Time to deploy some Memoir Nostalgia, as a distraction. Let me tell y...
2 weeks ago
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Chaffinch, 2021
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Everything is shit but here is a chaffinch and an impossibly blue sky on
New Year's Day.
2 weeks ago
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HOPE
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Bonjour,
This is the third time I've attempted to write a blog in the last few
months. Third time lucky - I hope!
Anyway I want to start by wishing yo...
3 weeks ago
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Three Month Vivos mRNA Update
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Firstly, Happy New Year to everyone reading this. Let’s hope 2021 is
way less shit than 2020 was. I’ve been using my Vivos mRNA Appliance for 3
months no...
3 weeks ago
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Almost Walking
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It’s been a rough year. I think we can all agree on that, so I thought I’d
share some good news—my health has been improving lately. The other day I
got ou...
3 weeks ago
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Multi-omics
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Coming soon.
The post Multi-omics appeared first on Open Medicine Foundation.
3 weeks ago
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Darkness and Light
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Today is the winter solstice, the longest night of the year. It’s a time of
darkness in a hard winter, but also a time of light as the sun begins to
return...
4 weeks ago
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Education & Outreach 2020 to 2021
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When I first started developing patient and provider education on
ME/CFS/FM, post-viral illnesses and related conditions, I had no idea just
how transforma...
5 weeks ago
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CBT for Long COVID and Post COVID-19 Fatigue Syndrome
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Could Cognitive Behavioural Therapy Be an Effective Treatment for Long
COVID and Post COVID-19 Fatigue Syndrome? Lessons from the Qure Study for
Q-Fever F...
5 weeks ago
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Something Overlooked?
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The last time I blogged here back in May, close to the start of the
pandemic crisis, I wrote about the pending reassessment of the ME/CFS NICE
guidelines a...
1 month ago
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Short Update
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There really isn't much to report on the M.E. or POTS front. I do think
that overall I am improved from 10 years ago. Very minor improvement, but
I'll ta...
1 month ago
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‘Invisible Octopus’ translated into four languages
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With the help of kind friends my ‘Invisible Octopus’ Poem has been
translated into four language: Spanish, German, Dutch and French. Scroll
down for: “I...
2 months ago
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Halloween Update Litany
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I’m going to try to write something. An update of sorts. Not necessarily
because today is exactly nine years since this illness stepped into my body
and st...
2 months ago
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Paul S Allen – Live at ADJØ
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This Saturday night I will be playing live at ADJØAll welcome! ADJØ10 Bank
Street 31 OctoberDoors 6.30pmKoha entrance (About me )Paul S Allen is a
singer-s...
2 months ago
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Rattle & …umm
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That awful moment where you lift the new bottle, and the sound of the
tablets shifting says “this is the wrong brand.” The manufacturer
discontinued the fo...
3 months ago
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The Gift of God | Pastor Kevin Sepulveda
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Hear my preacher, he has made understanding salvation easy....for the kids
even. I want you to have eternal life, love Judy
Nothing wrong with believing ...
3 months ago
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Illness in the Time of the Apocalypse
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I've been gone from this blog for a long time. Not because I've been too
sick to write but because I started a Facebook patient support group for
the h...
3 months ago
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Redirection
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Moved to: http://biowm.blogspot.com/
4 months ago
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Here is What You Must Know before Your First Chemotherapy
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Here is What You Must Know before Your First Chemotherapy – Your oncologist
may already gave you all the necessary information from drugs to side
effects a...
4 months ago
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AACIPM: Resources For People With Pain
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These have been trying times for everyone, and anxious times for many of us
living with conditions that cause chronic pain and illness. Everything I
w...
4 months ago
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Candy-Coated Regrets
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A couple of months ago in a moment of nutritional virtue I gave my husband
custody of all the chocolate chips in the house and asked him to put them
in the...
4 months ago
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Research shows how a diet change might help US veterans with Gulf War illness
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A new study shows the results from a dietary intervention in U.S. veterans
suffering from Gulf War Illness, a neurological disorder in veterans who
served ...
4 months ago
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Gulf war illness, chronic fatigue syndrome distinct illnesses, study suggests
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A brain imaging study of veterans with Gulf War illness (GWI) and patients
with chronic fatigue syndrome (CFS) (sometimes called myalgic
encephalomyelitis)...
5 months ago
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Adenosyl B-12 Resources
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This blog post contains information relevant to the deficiency of adenosyl
B-12, including discussions of the impact of this deficiency, what may
cause it,...
5 months ago
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This Blog Has Moved!
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*This Blog and the Latest News page on my website have been merged to give
a new Blog / Latest News page which can now be found on my website at - *
*http:...
5 months ago
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Situs Judi Bola Slot Online
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Pada kesempatan yang indah ini kami akan sedikit berbagi kepada anda
mengenai situs agen judi bola online yang benar-benar bisa dipercaya dan
terbukti memb...
5 months ago
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Hope for ME...
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ME Patients learn early on in their illness that Hope is often fleeting.
For decades, we have been neglected, abused, ignored and patronised by the
ver...
6 months ago
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Illness - Coping | Art journal pages that, at the time or in retrospect, deal with my feelings and experiences with chronic illness.
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Looking for something else, I found this photo-set that I made long ago at
flickr. I'd forgotten how often I made art journal pages about my illness,
and m...
6 months ago
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A temporary voyage in the same boat
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2020 is shaping up to be an interesting year, huh.
I haven't updated this blog since last August, mostly because blogging
doesn't seem like much of a thing...
8 months ago
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Not-So-Lazy Sunday
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I did sleep until 8:30, but since it has been raining non-stop I got a nice
mix of housework and fun stuff done today! I ordered a lovely puzzle for
myself...
9 months ago
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Six Mile Rule Study
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You can be part of a scientific study that will keep your brain busy while
you are quarantined for COVID Continue reading →
9 months ago
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Truth In The Time of Covid-19
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Truth In the Time of Covid-19
Hopefully most of us are practicing “social distancing” in an effort to
stop the spread of the dreaded Covid-19 virus. Fo...
10 months ago
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Coronavirus and fibromyalgia
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Wow, strange days we are living in right now!
How many years since I last posted? Well pre-cancer diagnosis.
Staying home and self isolating are easy afte...
10 months ago
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En GOD opplevelse på sykehus? Er det mulig?
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Jeg har dessverre mange dårlige erfaringer fra sykehus med meg i bagasjen
etterhvert, og har tidligere skrevet om hvor vanskelig det er for
ME-pasienter ...
11 months ago
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QUIZ: Name These Midwestern Animals
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Moose, deer, and bears, oh my!
11 months ago
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Stupid Society
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The *Super Bowl* commercials this year were dumb. Usually they're funny, or
poignant, or heart-tugging. This year exactly two of them made me laugh and
two...
11 months ago
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Human rights, the crimes against humanity law, and misopathy
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You might be interested in the modern crimes against humanity (CAH) law,
human rights channels, and misopathy. (If you're not interested in the CAH
law, ...
11 months ago
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Do Concussions Cause CTE?
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cellgevity-glutathione.com/ Chronic traumatic encephalopathy, or CTE, is a
degenerative brain condition tied to repeated head injuries. One of the
most top...
1 year ago
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Guess What?
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I’m doing very well. Very very well, in fact. Headed towards, well, normal.
I’m also cartooning regularly again after a looooong break. And posting on
Ins...
1 year ago
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How to win playing slots
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Looking to get lucky on slots but having a hard time striking a winning
combination?
Well, we've pulled together a list of tips that can help you make th...
1 year ago
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Credit rating
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Quick credits can be applied for in about 15 minutes without leaving your
computer, without certificates and without a guarantee. On the other hand,
loans ...
1 year ago
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I'm still here
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I haven't blogged since June because there's been nothing new to report.
My ME symptoms have remained steady for a long time, which is good. I
continue t...
1 year ago
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HOPE hides everywhere
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HOPE hides in the tiniest of spaces. We just need to take the time to stop
and look.
1 year ago
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Building Community
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Lately I’ve been thinking again about how isolated we all really are in our
suburban lifestyles. Building community should be the cornerstone of a
happy,...
1 year ago
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Wonders of Life
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*An April 2003 Journal Entry*
I had one of those rare but stunning moments the other day where I just
felt flooded by the utter profundity of this world – ...
1 year ago
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2010 cory ness jackpot for sale
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I BOUGHT THIS CLASSIC FROM A FRIEND THAT OWNED IT FOR 5 YEARS , HE WAS A
COLLECTOR OF RARE COOL BOATS , HE ALSO BOUGHT IT FROM A COLLECTOR IN OCALA
, FL. B...
1 year ago
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WERE TICKS USED IN BIOWARFARE EXPERIMENTS?
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Did the Pentagon weaponize ticks?CQ on Congress
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- News & Politics
Listen on Apple Podcasts
The House passed a bill this month that would...
1 year ago
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What’s Overall health?
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A lot emphasis is positioned on overall health nowadays it appears all over
the place you switch the thing is or hear something about either of these.
Mayb...
1 year ago
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Let's Build Our Power - #DisabilityVoteCA
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Let's Build Our Power - #DisabilityVoteCA Are you an independent living
center, disability organization, service provider, community group,
activist, or ar...
1 year ago
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New Church Glow
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*Quote by Natalie Snapp, made with Canva.*In January of last year I didn't
have a church to call home. The negative experiences I encountered in a
church...
1 year ago
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Why is everything so heavy?
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Yes, its a song lyric by the late Chester Bennington from Linkin Park; but
it’s so relevant. Why is everything so heavy? Before I continue I will warn
you ...
1 year ago
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What happened to you, Ben? (and net worth update for March 2019)
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My current net worth is €527,843.94 (78.78% of my first goal – €670K). I am
sorry, guys. This blog used to be an obsession. As I moved on with life and
m...
1 year ago
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Common Reasons Disability Claims are Denied
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Would you believe that around 30% of all initial disability claims are
denied Social Security benefits? Millions of applicants apply for
disability with th...
1 year ago
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Sleep Studies, Disorders and Treatments with ME
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In 2015 I detailed the best sleep aids for ME according to ME/CFS
specialists and my own experiences. Since this date I have been on a
rollercoaster jour...
1 year ago
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Blog going into Hibernation
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As many folk now know, I have recently been selected to sit on the NICE
Guideline Development Group for ”ME/CFS” as a lay member.
I have therefore decided,...
2 years ago
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A New Chapter Unfolding
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Dear Readers, As life moves on and the past grows more distant, I have
found it easier to let go of my experiences recounted in this blog of
homelessness a...
2 years ago
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OMF conference - The Molecular Basis of ME/CFS
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For years I have stayed at the Cardinal Hotel in Palo Alto. This is an
old-fashioned California hotel. It has a large, high-ceilinged, tile-floor
lobby wi...
2 years ago
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The last blog of Chronic Fatigue Syndrome Treatment
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After considering the matter for sometime, I have decided today to begin
the process of shutting down 'Chronic Fatigue Syndrome Treatment' and all
of its r...
2 years ago
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'Post-exertional malaise' - Does It Need a New Name?
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Yes, another post about nomenclature. Seems my having this disease, which
I'll call SEID, systemic exertion intolerance disease, is appropriate since
the...
2 years ago
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Blue-eyed Hawker tick
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In spite of many trips to Cyprus and the Med this was an ode that I had
never seen and had been meaning to go to Essex to see them but never got
there, alw...
2 years ago
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An Update
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Six months ago, there wasn’t a single number in my phone belonging to
someone I could call a friend. I had absolutely zero local connections or
sense of co...
2 years ago
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Discover A Wide Range Of High-Quality Cannabis Seeds
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[image: Cannabis Seeds]
In today’s world, there are many different strains of cannabis seed and
also wide range of seed companies available to choose fro...
2 years ago
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A Conversation Caught in Passing
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*Setting: A coffee shop on a Tuesday afternoon, at the next table.*
*Woman A to her friend: You know, I really miss my cousin. I know that she
says that sh...
2 years ago
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This Blog's New Location
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[image: In Darkness Sing]
JrnniferSaake.com
It's only been a 6-year process (don't ask), but I am so very excited to
unveil JenniferSaake.com tonight. It's...
2 years ago
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I've Moved
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[image: In Darkness Sing]
JrnniferSaake.com
It's only been a 6-year process (don't ask), but I am so very excited to
unveil JenniferSaake.com tonight. It's...
2 years ago
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I FEEL BAD FOR LADY GAGA
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When someone famous
is diagnosed with Fibromyalgia
we jump on it.
Why?
If someone famous has it we will be able to validate our own problems with
F...
2 years ago
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Supplements for Nerve Pain
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Here’s some of the findings from my research into supplements which may
help with nerve pain and small fiber neuropathy. Some of the results are
based on d...
2 years ago
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There's an Angel Among Us Linda Tannenbaum Is Offering Genuine Hope to ME/CFS Patients
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OMF Founder Linda Tannenbaum is the catalyst for increased ME/CFS research,
renewing hope for millions of patients.
2 years ago
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There's an Angel Among Us Linda Tannenbaum Is Offering Genuine Hope to ME/CFS Patients
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OMF Founder Linda Tannenbaum is the catalyst for increased ME/CFS research,
renewing hope for millions of patients.
2 years ago
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Don't use your energy to worry, use it to believe in yourself!
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Hi Everyone! Today I want to focus on how to manage the energy we have for
the day. I know I don't always wake up full of energy but I try to find
ways to ...
3 years ago
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Changes to the Blog for 2018
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Hello my loves! Wow, it’s been so long since I’ve written a post for you
all- this feels strange, but also so good! Happy New Year! I hope you’re
all doi...
3 years ago
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INIM ME/CFS Genes Study Is Recruiting!
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*From The Institute of Neuroimmune Medicine*:
We are currently recruiting ME/CFS patients AND Healthy Controls for this
completely web based study to cre...
3 years ago
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INIM ME/CFS Genes Study Is Recruiting
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From The Institute of Neuroimmune Medicine:We are currently recruiting
ME/CFS patients AND Healthy Controls for this completely web based study to
create a...
3 years ago
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Where have I been?!!!
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Nowhere really. I haven't been getting out much and have a lot of stress
health wise.......due mainly to the Department for Work and Pensions. Not
much cr...
3 years ago
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Ten Years Later
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Photo by JamiesrabbitTen years ago today, I started this blog because I was
four months into a mystery illness that had taken over my life. I was
scared -...
3 years ago
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Capelli Dybala 2017
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Mi taglio i capelli come Dybala YouTube Dybala Archivi Pagina 5 di 8
LoStadium.it Paulo Dybala: Juventus will not free me for Olympics Goal.com
TUTORIAL ca...
3 years ago
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The American Flag, The American Anthem and American Statistics for Military Service and First Responders
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“ Ten United States flags float gracefully over Ground Zero as a sky-diving
team honored the victims of the September 11, 2001 terrorist attacks in a
uniqu...
3 years ago
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Can you help me spread the word? Coco & Louise Coaching Recordings
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If you read my previous post, you’ll know I’m: Not working online as much
lately to give my poor head a break from the electro-magnetic induced
migraines...
3 years ago
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Crafting is my Therapy. What's Yours?
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I suffer with chronic fatigue syndrome, anxiety and depression. Together
they can make me a very fatigued, emotional, angry, withdrawn person. I
over do th...
3 years ago
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Hello world!
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Welcome to WordPress. This is your first post. Edit or delete it, then
start writing!
The post Hello world! appeared first on Sarah Marie Lacy.
3 years ago
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Are You the Bull or the Butterfly?
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Contraction vs Expansion Contraction is a state of resistance, tension, a
need to control or protect. Expansion is a belief or faith that regardless
the ci...
3 years ago
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Phoenix Rising: The Gift That Keeps on Giving All Year Long
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*This holiday season Jody Smith turns her eyes to the people of Phoenix
Rising and gives thanks for you all …*
[image: pixabay-christmas-present-publicdo...
4 years ago
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The Reckoning and Rilke
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When all else fails write. Except I haven't been able to. But I need to
so I'll make an attempt at a post. More importantly though is a need to
focus on...
4 years ago
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Down With The Sickness
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Briefly touching base here (and hoping I remember how to post!) to
recommend a new blog begun by a friend. Down With The Sickness is Good
Stuff, give her a...
4 years ago
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What even is ME?
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What is ME?
This, I find, is one of the hardest questions that people ask, many people
say is it just when 'your tired a lot of the time?' I wish it was ea...
4 years ago
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My 24 years with Myalgic Encephalomyelitis
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I have had Myalgic Encephalomyelitis, or M.E, for 24 years. The CDC does
not recognize this. They insist that I have a condition called "Chronic
Fatigue ...
4 years ago
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Social media and a year of blogging
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I never used to be one for spending all day on social…
4 years ago
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I Still Love You - A Love Song
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When I was 14 years old, like a lot of teenagers, I dreamed of being a pop
star. Well, it never happened! I did learn to play the guitar and was soon
try...
4 years ago
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A Library Theatre Performance
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You know how much I love libraries; but you may not know I also love
theatre. I do love acting and performing, but even more-so there is little
I find as t...
4 years ago
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How I Turned Up Missing
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*San Francisco was my destination in 1992*, now it's the site of one of many
May 25 protests around the world about ME/CFS, and the "millions missing,"
of ...
4 years ago
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Caged Bird: The Soul that Sings
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Hello, everyone! *waves wing*
It's been a while, hasn't it? Unfortunately, my body decided to have a
MAHOOSIVE crash last April, after several months' bui...
4 years ago
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Would you like to volunteer as our Social Secretary?
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Edmesh is looking for a volunteer Social Secretary. This exciting role
would involve organising fun and rewarding social events for the edmesh
community. W...
4 years ago
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Taking Great Shots Of Your Baby
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Taking Great Shots Of Your Baby
*Taking Great Shots Of Your Baby* Your baby is very lovable, and nothing
makes a father or mother prouder than sharing pix ...
4 years ago
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The Condition Affects More Than Three Million Americans, And Is Pretty Common In Kids And Adolescents, Specifically Those With Generalized Epilepsy.
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In addition to these technical considerations, the summit also examined the
economic and social barriers standing in the way of the widespread have on
...
4 years ago
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Proof Positive?
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The SMILE trial is set against the background of an approach known as
‘biopsychosocial’. In the context of ME/CFS, this approach presupposes that
the initi...
4 years ago
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Bowie
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This post has been a while coming because the shock of hearing of Bowie’s
death has taken time to sink in. He always seemed other-worldly and so it
se...
5 years ago
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Some of my Christmas Angels.
5 years ago
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Terug Naar Morgen (2015)
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Free Streaming Terug Naar Morgen in Best LookNow you can play full Terug
Naar Morgen in best look with duration 86 Min and was released on
2015-09-30 with...
5 years ago
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Its been a while..
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How is everybody ? Its been a while since updating this blog, mainly
because I just haven't had the energy to do it, but today is one of them
days that I f...
5 years ago
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宮崎風俗バイト未経験者は老舗がおすすめ
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未経験者が宮崎風俗バイトの求人情報を探す場合にはわからないこともたくさんあるでしょう。
未経験者なら老舗の風俗店がいいでしょう。老舗で大手のお店ほかの店舗との違いノウハウや実績がありますので、新人が入った場合も、軌道に乗
Continue...
5 years ago
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Why blog?
-
Things have been quiet around here for quite a while. Thankfully, this
isn't due to a deterioration in my health; I've just been working on other
projects ...
5 years ago
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Don't Join th CDC Rescue
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DON'T JOIN THE CDC RESCUE being promoted by the CAA/SMCI supporters! All
the CDC does with its "CFS" budget is hurt M.E. patients; why should any
patient...
5 years ago
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NIH Seeks Public Input on Strategic Plan
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In response to at request from Congress, the U.S. National Institutes of
Health (NIH) is developing a 5-year strategic plan which will, among other
things,...
5 years ago
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Johnson and Johnson Clean and Clear Moisturiser Part 1
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[image: Essential Moisturiser Oil free won't clog pores]
*Introduction*
Life changes can be large and small, from eating right to using healthy
skin product...
5 years ago
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Michael J Wormald Publishing
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‘The Truth will Out’, Only if you find it and write about it! Michael J
Wormald Publishing was established to publish Historical Fiction and
Non-Fiction, S...
5 years ago
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Leaving Diaspora Action Australia
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DAA Donor Drive "thank you" messages; photo: Dinesh LiyanageToday was my
last day of work at Diaspora Action Australia. It's been an amazing and
rewarding...
5 years ago
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ME/CFS Mother's Day - Mothers with ME/CFS should pride themselves of being some of the best mothers in the world
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*Happy Mother's Day!*
*Today, when it is Mother's Day, You who are mothers with ME/CFS should
rejoice, celebrate and give yourselves a big pat on the b...
5 years ago
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Saying Goodbye to My Chronic Friend Laurie from Hibernationnow
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Laurie heading to her next destination. It's been a little over a month
since my friend Laurie passed away from acute interstitial pneumonitis, a
form of...
5 years ago
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Le Re-tour
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Today is ME Awareness Day. How do things look for us? In comparison to
five years ago when I last wrote things are much much better. Then I really
had no ...
5 years ago
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Stella Luna
-
After I remembered how to get into my blog yesterday I was truly surprised
it had been soooo long since I've written, as I write in my head all day
long.
...
5 years ago
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KONSEP PENDAPATAN NASIONAL
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KONSEP PENDAPATAN NASIONALDefinisi pendapatan nasional
Pendapatan nasional adalah pendapatan yang diterima oleh golongan-golongan
masyarakat sebagai bentuk...
5 years ago
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Sadly, it's still a problem
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Still here.
Remembered my password.
It's still frustrating living with an invisible illness.
I'm in an office environment for about 4 days a week. Fantast...
5 years ago
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Recovery
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It’s been over a year and a half since my last posting. Back when I combed
the Internet for fellow sickies’ thoughts, I’d come across archeological
remains...
5 years ago
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Who am I?
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It happened again. That thing that happens, where I'm feeling
significantly better and the world is so much brighter, tasks easier, hope
stronger, so much...
5 years ago
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A change of view come evening
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Yesterday we noticed a cherry picker at the street light outside next door.
Assumed the bulb had gone and needed changing. But then puzzlingly it
stoppe...
5 years ago
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The IOM Report proposes new name: Systemic Exertion Intolerance Disease
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I know I haven't blogged in over a year, but I had to write something when
I saw this headline on a New York Times article:
Chronic Fatigue Syndrome Gets A...
5 years ago
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Last Post
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To my dear followers, friends and spoon family,
I want to thank you for following this blog for the past 4 years, for your
non-stop support and for your in...
6 years ago
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Bones Kidneys Worms Music
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Oooh lots to mention in this post.
*Bones:*
I was recently diagnosed with Osteoporosis and I wanted to talk about this
as a warning to anyone who has a in...
6 years ago
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MY HEALTH AND SEX LIFE ARE IMPROVING!
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I'm thinking of closing this blog down. I guess I doubt whether it has made
any difference to anyone, so what is the point of airing our most intimate
is...
6 years ago
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Letter to Bill Gates
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10.11.14
Dear Mr. Gates,
I'm writing you here because I cannot say what I need to in the 512
characters allowed on your blog.
Perhaps you could write...
6 years ago
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A New Adventure
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or The Pleasure of Your Company Is Requested My friends, I've begun a new
blog. It's not a gardening blog, though gardens will often be mentioned.
It's m...
6 years ago
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What do you do all day? (Therapies I have tried)
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*What did you get up to this week? What do you actually do all day?*
I don’t mind being asked these common questions, in fact I quite like it,
but it’s how...
6 years ago
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I've not been here for awhile. I shut down over a year ago. I was tempted
to press delete, yet didn't I put the blog on hold. Lots of things have
happen...
6 years ago
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GcMaf, the journey; Day 3 and 4
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*Day 3 was Saturday August 16.*
I did fairly well after the first rally of autoimmune attack. I recovered a
bit the third day and the fourth day I was fe...
6 years ago
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Go Fourth and celebrate!
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glitter-graphics.com
6 years ago
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Charity RETRO Strut, Spin & Jumping Party!!
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Coming soon, book your place now Charity RETRO Strut, Spin & Jumping
Party!! in aid of ME Support N.I. Friday 20th June 6-8pm Club Oxygen Health
& fitness...
6 years ago
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Let it Go, Dr. Koh: The Truth Never Bothered You Anyway
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After watching “Frozen,” this line would not leave my head: Let it Go, Dr.
Koh: The Truth Never Bothered You Anyway Of course, this is pure satire
having a...
6 years ago
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M.E. Awareness Day & Week
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Today is M.E. Awareness Day and this week is also M.E. Awareness Week, so I
thought I'd come and write something here.
I've lived with M.E. for 23 years no...
6 years ago
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Rock Concert (and Other Animals)
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The inside of Signs Cottage is about to have a white lick of paint. Not so
much a facelift as a cheap, damage-limitation makeover. For this reason,
an...
6 years ago
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What I Found Out in a Day on Twitter
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I've had a Twitter account for a while, but haven’t seriously used it. However,
yesterday I spent my first full day checking my account and monitoring
twe...
6 years ago
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My Recovery from ME/CFS/CFIDS and FMS and Complementary and Alternative Medicine (CAM)
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Sophie Meredith
I haven't written for some years here. I do look back frequently and the
cellular memories are strong. I remember the sensation of draggin...
6 years ago
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Realising just how much things change
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It's been a while since I even logged into this site let alone looked at my
blog. If someone had said to me a year ago that I would be writing these
words,...
6 years ago
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(A?)musing de Bergerac; artistic, idealistic and ailing: Trust All, But None Complete
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(A?)musing de Bergerac; artistic, idealistic and ailing: Trust All, But
None Complete: A lot of conversations about trust lately. Recently, more
than ever ...
6 years ago
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12 Symptoms of autoimmune disease infographic
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There are many diseases that are classified as autoimmune diseases. Many of
these diseases share symptoms. Gretchen over at autoimmunemom.com sent us
this ...
6 years ago
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THE WHOLE DAMN CHRONIC SITUATION: EVERYTHING HAPPENS FOR A REASON......REALLY?
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THE WHOLE DAMN CHRONIC SITUATION: EVERYTHING HAPPENS FOR A
REASON......REALLY?: Illness is something that makes people search for
answers. This is especial...
6 years ago
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Final week!
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This is it, this is my last week before reintroduction phase of the FODMAPs
diet. I’m so very very excited and scared. What if I start reintroducing
foods ...
6 years ago
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Design Wall Monday Flying Geese Valentine Style
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This pic is sideways as I could not get blogger to pick it
up as it was rotated in my picture file the right direction.
These Flying Geese finish ou...
6 years ago
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Christmas Tree Lights
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Yesterday I finally started to take down my tree. I'd planned to start on
January 5 and be done by the twelfth night, but a post Christmas illness
being s...
7 years ago
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Hiatus
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No, I'm not returning to blogging. At least not yet. I'm still far too ill
(though slightly better than I was when last I posted). But I have been
doing a ...
7 years ago
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The Graceful Artist
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A little over a year ago I took an online drawing class with a fabulous
instructor named Elizabeth Johnson. Elizabeth, along with a group of
like-minded f...
7 years ago
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What If I'm Just Lazy?
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I don’t like to admit it, but every now and then thoughts about whether I’m
just lazy creep in. Being sick for an extended period of time can make it
hard...
7 years ago
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24 Ways to Say Thank You: A free download from me to you.
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Intern Michelle and I noticed that August is National Admit You're Happy
Month, and we thought about gratitude—how totally good it is for you, and
for ev...
7 years ago
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Lyme disease recovery stories. Oh yes. It’s possible.
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Here's a collection of inspirational recovery stories from Lyme disease.
Each person did it their own way with their own sense of determination and
grace. ...
7 years ago
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Progress of my physical activity
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I've been in a bit of an emotional slump this last month or so, on the
verge of tears (and beyond) constantly, and have been trying to pull myself
out of i...
7 years ago
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Catching up again
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Just a quick glance through the last load of moaning shows that I've missed
out a fair bit in my journal of late. We managed to get elf into our first
choi...
7 years ago
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WHEN THE CLOCK STOPPED
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I keep glancing at the clock. I'm counting down the hours, the minutes.
And at the same time I'm winding back the years.
Now. It would have been rig...
7 years ago
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Fatigue is not a disease
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Please sign a petition to pressure the Department of Health and Human
Services to take Chronic Fatigue Syndrome/myalgic encephalomyelitis
seriously. I was ...
7 years ago
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A Move
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[image: image]
Last May, Mike and I moved into a new apartment. At the time, we had lived
on the second floor of a 1916 duplex for nearly nine years. The...
7 years ago
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Everything can be a prayer – it all matters.
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Do you think you don’t matter because you can’t do “big” things anymore?
Click here to read a short entry on the blog of a Benedictine monk..
Tagged: Bened...
7 years ago
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HAWMC Day 15: On being inspired.
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Today I am detracting a bit from the prompt provided by Wego Health. The
topic seemed to require way too much energy and cognitive work, which I
don't ...
7 years ago
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Weekend sendoff: To-do list
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Plans. Continue reading →
7 years ago
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Everything I Needed to Know About Managing My Health I Learned at Disneyland
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The patient didn’t know it, but she was just *60 seconds away from relief.*
Standing at the doorway to Dr. Goldstein’s office with some PLO-gel
glistenin...
7 years ago
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Woman Goes On Hannity, Says Men Should Not Rape Women, Gets Gang Rape Threats
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A whole lotta racists, rape apologists, and NRA'ers with kneejerk reactions
to someone addressing rape culture.
7 years ago
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Natural, Non-Toxic, Beauty
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Also posted on my photography blog...
www.shandymontephotography.blogspot.com
I recently sent a list of safe makeup companies to a friend who was asking
...
7 years ago
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FDA'S DOUBLE STANDARD
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A mad-as-hell Sid Wolfe of the watchdog group Public Citizen sued FDA about
the agency's refusal to ban the highest dose of the Pfizer Alzheimer's drug
Ari...
8 years ago
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A Chronic Dose Has Moved, Part 2
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Remember that post where I asked you to come over to my new site and
subscribe using either the feed button at the top right or the box on the
right sideba...
8 years ago
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Invest in ME Website - Support ME Awareness
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Invest in ME., myalgic encephalomyelitis., Why ME means Myalgic
Encephalomyelitis
8 years ago
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Llewellyn King's Dec 15, 2012 article on the Stamford Advocate on the FDA
approval meeting of Ampligen dated Dec 20, 2012.
Llewellyn King host and producer...
8 years ago
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Autumn Jog
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Sometimes I just need to get out of the house. I can admit I was a bit
anti-social last week due to the whole ME thing. I'd been feeling ill for a
while an...
8 years ago
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working title
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8 years ago
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WANTED: A dynamic …
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WANTED: A dynamic, high-profile
celebrity To do for ME/CFS what Elizabeth Taylor did for AIDS, what Jerry
Lewis did fo...
8 years ago
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Lost In The Fold
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Several people have emailed me privately about the veracity of Lisa &
Erik’s claims, some even saying that they’re not as healthy as they make
themselves o...
8 years ago
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Coxless Four
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I didn't think I was going to enjoy the Olympics. The dire logo and the
oddly disturbing mascots, Wenlock and Mandeville, inspired little
confidence. Cos...
8 years ago
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Healed by the Healer! Thank you Jesus!!
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So, about 3 months later, I write to announce wonderful news that the *healing
that I anticipated....*
*...has HAPPENED*!
Yes: I kid you not. Jesus bro...
8 years ago
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Just a note
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Hi to you all. I so appreciate all your loving thoughts and prayers. I am
doing better and being much kinder to myself these days.
My brother is still no...
8 years ago
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A Few Good Men
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Would you actually like to find a Health Care Professional that does not
belittle you and tell you that you are crazy, just because you dare to want
a bett...
8 years ago
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Living An Irony, Still
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Living An Irony, Still By John Herd June 24, 2012 Many years ago I went to
my internist for a routine checkup. While seated in the waiting room I was
asked...
8 years ago
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recovery is possible
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[image: living chronically]
Hello friends!
Did you think I'd abandoned this blog altogether? Well, I don't post
anymore and just happened to take a look ...
8 years ago
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show me the light
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it had been five months since any outing (with the exception of a couple of
medical appointments i only just made it to). and i could feel my soul
wit...
8 years ago
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Walk a mile in your own shoes
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I’m still struggling with my future. Unsure of where I should turn next. I
was reading through my old posts and found one where I promised to not feel
guil...
8 years ago
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Feeling blue...
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Was getting a bit bored the other day...what could I do to bring some
excitement into my otherwise mundane & humdrum life? Like all brilliant
solutions, th...
8 years ago
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Profit and Loss
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For patients to have confidence in the doctors treating them, it is
essential that each patient is certain that treatment recommendations given
by their do...
8 years ago
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Introduce yourself
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Hey People,
Many of you will have seen, and already written a little about yourself in
my *'Say Hello'* section on the right hand side of my blog. For any ...
8 years ago
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#125~ ME/cfs: Emily's Last words ~ RIP
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Well folks, That "Invisible Illness" ME/cfs has just claimed another loving
soul.
Another that fought long and hard and did her share of Advocacy..
Please s...
8 years ago
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Household Of The Disabled
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We have a unique household in that each of us; human, feline and canine are
disabled in our own way. I shall deal with our pets today as our oldest
cat, J...
8 years ago
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Hot as Hell
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So, the heat of the last 4 has made me put pen to paper. CFS + HEAT do not
compute. Add to that malaria tabs (see Malanil) – which I believe have a
cumulat...
9 years ago
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Blogging Hiatus
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I think I need to declare a break from blogging, or perhaps change the way
I do it. I find I am really only blogging for myself these days, to
remember wha...
9 years ago
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dream
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I had a happy dream last night.
I was outside. I don't know what time it was -- dark enough to be able to
see the stars, but light enough to see. All of th...
9 years ago
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A Call For Help
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Maria's Story - Click for YouTube vid
We are getting close to Christmas. A time when many of us spend a lot of
money on luxuries. I am writing this pos...
9 years ago
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Verlorene Zeit hat Geburtstag
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Neben Weihnachten und ein paar weniger schönen Jubiläen bringt der Dezember
einen weiteren Jahrestag: "Verlorene Zeit" wird heute 2 Jahre alt!
Am 4. Dezem...
9 years ago
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Call for Candian Government to hold Rituximab Clinical Trials for ME/CFS patients
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Sent to:
Health Minister Hon. Leona Aglukaaq : leona.aglukkaq@parl.gc.ca,
NDP Health Critic MP Libby Davies : libby.davies@parl.gc.ca
Liberal Health Critic...
9 years ago
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CJ'S 12 Days Of Christmas
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Day One of workshop and the assignment was Balancing Act. The brief was to
take a set of photos indoors testing different WB settings
9 years ago
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Drifting on a Sea of Disconsolation
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Seriously, I'm out of control. It's kind of my favorite explanation for my
life right now. "Get out of the way, everybody! Don't act like you weren't
warne...
9 years ago
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Rituximab and immune system "resetting"
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Inspired by friend and fellow blogger Rambler, I'm getting back to doing
some blog posts.
The big exciting news in ME/CFS is coming courtesy of two doctors...
9 years ago
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Erased
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This blog is no longer active.
9 years ago
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PfaM Call for Entries
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PfaM (Patients for a Moment) is a patient-centered blog carnival (a sort of
blog promotion event) that revolves entirely around…
9 years ago
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Blogging
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If I continue blogging, it will be at this site: In the Ever After. If….
9 years ago
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An Update
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Jessica is going to college! She started her first year of college this
fall, and she's loving it! And seems to be doing well. (Would she tell me
if she wa...
9 years ago
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Reverting
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I changed the name of my blog back to "Living the CFS Life." So much for
XMRV. At least it has drawn attention -- and research dollars -- to our
disease....
9 years ago
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Cabin Fever
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I love our home, which is off the beaten path. The acreage gives us
privacy, and being surrounded by forest is very peaceful. A creek meanders
through th...
9 years ago
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It's All In My Head
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My health problems are in my head—literally. Research, monitoring my heart
rate for 3 months, and Dr David Bell’s home test
http://aboutmecfs.org.violet.ar...
9 years ago
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this is not a poem.
-
it's been a run on sentence kind of day
a couple of days ago i took a heavy clunk to the head
which is up there on the list of
*really bad things that should...
9 years ago
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Position statement (ICD-10-CM proposed coding issue)
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Position statement (ICD-10-CM proposed coding issue) Shortlink:
http://wp.me/p5foE-3kj 25 September 2011 Since I continue to be
misrepresented on at least ...
9 years ago
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Patient Actions
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Environmental Illness/Multiple Chemical Sensitivity Petitions Position
Statement: Multiple Chemical Sensitivity Italian Petition for recognition
of Multipl...
9 years ago
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Life, love and work
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Well it's been over a year since I last blogged apparently! The main reason
for that really being that life has been moving on and strangely one of the
thi...
9 years ago
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Revoking the lies
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I'm sure all of us, at least once or twice in our lives have had harmful
words spoken over us. The problem with harmful words is that if we allow
them to...
9 years ago
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Research paper: CFS, the immune system and viral infection, 2 July 2011
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From the M.E. Association's website, a post by Tony Britton entitled
'Research paper: CFS, the immune system and viral infection, 2 July 2011':
From Brain,...
9 years ago
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Thoughts on Summer
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I love everything about summer. I love warm weather, sitting in the sun,
swimming in the ocean, grilling out, shopping for seasonal fruits and
veggies at f...
9 years ago
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Vote for WPI!
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[image: Vivint is giving away $1.25 Million to charities. Help us win!]
The Vivint Givesback Project needs your help in honoring local charities
that are do...
9 years ago
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Life continues, but not this blog.
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Gosh, I’m sorry I left so many people wondering what has happened to me
over this past year. I’ve gotten almost well, and am painting like a
fiend, and te...
9 years ago
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Vote for WPI!
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Hi everybody!
We're writing to you today to ask you to show your support to the ME
research via the Whittemore Peterson Institute.
They are running for th...
9 years ago
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Pretty simple, huh?
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*http://tinyurl.com/6a2baeh*The Telegraph today may be showing pretty
pictures of bacteria but they display OLD-STYLE microbiology when we know
at a mole...
9 years ago
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A year on
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Blimey, didn't realise it's been a year since I last updated!
As today is ME/CFS awareness day I thought I would spread the word again
and have linked last...
9 years ago
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Twibbons for Profile Pictures
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I’ve made a range of Twibbons from the awareness badges. You can add a
ribbon to your profile picture for things like blogging, Facebook and
Twitter using ...
9 years ago
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Hiatus
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Due to the condition of my health, I am forced to stop doing almost
everything... except manage my illness. I am very upset about this, but I
can do n...
9 years ago
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An Interview with Laura Hillenbrand
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http://www.naturalsolutionsmag.com/articles-display/15878/keyword/hillenbrand/Living-with-Chronic-Pain
Some excerpts:
*...
9 years ago
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Nutritional Balancing Science
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Over the past 3 years I have trialled all available treatments I have come
across for ME/CFS. Steadily over time I became more and more unwell which
is why...
9 years ago
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I have a problem with Trine Tsouderos's reporting on XMRV: 3 of 3
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Part 1
Part 2
Before I get back to this last installment, this last look at the reporting
of Trine Tsouderos to date, I want to address one specific c...
9 years ago
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Take the Sandals from your feet for the place you stand is holy ground. (Exodus 3:5 HNV)
-
While doing some reading ( I bet you know what I was reading, and where at
in the book I was)
I came upon the phrase “holy ground” and of course my AD...
9 years ago
-
Hiatus
-
Everything is on hold indefinitely. I can barely move. :( I'm so sorry,
but I can't.
9 years ago
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Chronic Fatigue Syndrome And Psychotherapy
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When you have CFS one of the greatest battles you fight are the ignorant
smirks and expressed disbelief of those who think it's all in your head;
that is, ...
9 years ago
-
Is XMRV Research Dying?
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The recent weeks have left one to wonder - is XMRV becoming a dead issue
like all other previous "causes" of Chronic Fatigue Syndrome? On the other
hand, ...
9 years ago
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Thank You Ian Swales MP
-
A thank you email I sent to Ian Swales MP in response to the Parliamentary
debate on ME 2nd February 2011 as well as his EDM 778 on ME Research 9
February ...
9 years ago
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Life goes on
-
How’s January shaping up for everybody? I have to say, I’m having a
considerably better January than most of my friends, but it hasn’t come
without drawbac...
9 years ago
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Bringing the Heat: An ME/CFS Blog
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Bringing the Heat: An ME/CFS Blog
A wide-ranging, often rankly speculative and occasionally irreverent take
on the world of chronic fatigue syndrome (ME/CFS...
10 years ago
-
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Thought I would go with a bit of pink today....as I'm such a novice I don't
know of any other way to jazz things up a bit....anyway its Sunday evening
21.0...
10 years ago
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Lauricidin has helped me!
-
I have a wonderful Rheumatologist who seems to be ahead of the game when it
comes to innovative treatments for my disease. I have tried many
supplements, ...
10 years ago
-
I'm a veteran.
-
I may be a beginner at blogging, but I'm a veteran at CFS/CFIDS/ME
(different names for the same disease). I caught what the doctor thought
was the flu in...
10 years ago
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XMRV
-
I have always been looking for that White Steed, I hoped that a handsome
knight might be aboard, however it was not to be. Like Snow White I was
stricken ...
10 years ago
-
ME (CFS) and XMRV
-
In 2009, Whittemore Peterson Institute scientists discovered a significant
link between a newly-found retrovirus, xenotropic murine leukemia
virus-related ...
10 years ago
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XRMV+ and Desperate for a Cure
-
Fifteen years ago, I was a very happy, healthy preschool teacher. I was the
wife of a man I adored and had three growing boys/men who were the light of
my ...
10 years ago
-
XMRV and Hope
-
Sometimes I think of my life as having two parts. The full and active life
I had before being diagnosed and the shadow life after the onset of ME/CFS.
Thin...
10 years ago
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CDC: Property Worth Millions Unaccounted For - AGAIN. Different Decade Though
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http://www.thenewamerican.com/index.php/usnews/health-care/5702-cdc-property-worth-millions-unaccounted-for
*CDC: Property Worth Millions Unaccounted For*
*...
10 years ago
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A BELATED MESSAGE
-
Hi All.
I hope that you all had a lovely Christmas and Best Wishes for the New Year.
Working four days a week is better to manage my energy levels.The fact ...
10 years ago
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No Laptop
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Well Yule is upon us all and I hope everyone is having the best Yule they
can. My love and thoughts go out esp to those severely ill, and alone.
((Gentle h...
10 years ago
-
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Holidays!
-
*Holidays!*I finished orientation yesterday, and today is the first day of
my summer holidays. Or, as it's now called "study break"... I have a tonne
of ho...
10 years ago
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I Remember ME - A Documentary About ME/CFS
-
This is a documentary was made in 2000 by Kim Snyder and tells the story of
the outbreak of a disease at Lake Tahoe in 1984-85 which the CDC failed to
reco...
10 years ago
-
-
i grew up in the beautiful mountains of va. in a very small town with the
connectedness that comes along with that. life was often disrupted because
my fat...
10 years ago
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Climbing out of the Bed
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I can't believe how long it's been since I last posted. To be honest, I
haven't even turned on the computer this entire time. To say I have
crashed, would ...
10 years ago
-
Making a move
-
It's been a long time since I posted. Since then I've finished my masters
and application for the PhD studentship and now waiting on the results of
both. I...
10 years ago
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Failure to Thrive's Last Post
-
I started this blog when I learned about XMRV, The Whittemore-Peterson
Institute, and the XMRV connection to CFS/ME.
I felt the need to chronicle the crit...
10 years ago
-
New CDC CFS/ME Website & Dangerous Lies!
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*New CDC CFS/ME Website & Dangerous Lies!*
*New name already implemented by the CDC?*
*This could do more harm then they have done is 30 years!*
*By: Carol ...
10 years ago
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A Picture of Health
-
The purpose of this entry is to provide some microscopy images and diagrams
generally of retroviruses, and more specifically of the XMRV retrovirus, as
wel...
10 years ago
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8/12/10 2:53 PM
-
10 years ago
-
No, you're not crazy...
-
No, you haven't clicked onto the wrong site and you haven't lost your mind
(about this anyway, lol). I have completely re-done the color scheme, font,
and ...
10 years ago
-
Blogging along on a rainy Monday
-
Well sudden changes
The weather outside is frightful, but the heatings so delightful.......
What a change in the weather its gone from hot to humid (didnt ...
10 years ago
-
It's All About M.E. Harping for Myalgic Encephalomyelitis
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Here's another video I put out, but his one includes my harp.
http://www.youtube.com/watch?v=L8xuxUKUTKE
10 years ago
-
ME Awareness Week 2010.
-
This year I was hoping to write something witty, interesting and
informative, but then several months of unrelenting brain-fog set in and I
have absolute...
10 years ago
-
If you are not familiar with ME/CFS.
-
This is only about 3 minutes long & is some very good info if you are not
familiar with ME/CFS. It is the recent testimony of Annette Whittemore,
founder &...
10 years ago
-
Sometimes I Feel Like A Ghost
-
May 12th is International ME/CFS/FM Awareness Day. For the second year I am
participating in Blogging for ME/CFS Awareness.
For the last couple of months I...
10 years ago
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bye, so long, i’ll see you by and by
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this blog has reached its natural conclusion. the experiences depicted here
have turned into different experiences, to be chronicled elsewhere. this
partic...
10 years ago
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Well its time to update this sorry blog again! The last few weeks have been
peppered with a bit of fun; which has been nice. I went to visit my
cousin's ba...
10 years ago
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Dr. Judy Mikovits XMRV Q & A by ProHealth
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Dr. Judy Mikovits XMRV JANUARY 22ND 2010
by ProHealth
Dr. Judy Mikovits XMRV Presentation from ProHealth on Vimeo.
Dr. Judy Mikovits XMRV Present...
10 years ago
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2010 update
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So, I sort of left this blog hanging at the most suspenseful moment. But I
guess people are still finding it, so I'll update. I'm doing much, much
better...
11 years ago
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Struggling
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Boy, the last few days I have really been struggling. Thursday night my
sleep was disrupted and I really went downhill from there. Friday and
Saturday were...
11 years ago
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Sausage on my nose.
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The worst pain is emotional. Sure I feel sorry for myself sometimes when I
think of things I used to do and can't now, but there's ten thousand times
the s...
11 years ago
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first month starting out with valcyte
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*week 1*
so i am starting out on 1 pill a day (450 mg). so far i'm not feeling any
difference. with valcyte you are supposed to feel a die-off effect, takin...
11 years ago
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Just a note..
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...to say that I am actually still alive and well, and dare i say it,
almost thriving!!
Still no internet though.. SIGH.. looks like it'll be February bef...
12 years ago
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Finally, I've given up
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So, during the past couple of months, I've been up and down. Mostly down.
In fact, I've been progressively getting worse and a couple of weeks ago I
told D...
15 years ago
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